The City Hall of San Sebastián de los Reyes will turn green on June 13th as part of a national awareness campaign for Apert syndrome. This initiative, promoted by the National Association for Apert Syndrome and other syndromic craniosynostosis (APERTCRAS), is part of the international month dedicated to raising visibility for this genetic condition.
Under the slogan ‘Illuminate to be Visible,’ the campaign aims for buildings and public spaces across Spain to become centers for awareness on diversity, inclusion, equity, and the rights of individuals affected by these conditions. The City Hall's illumination seeks to contribute to public knowledge of Apert syndrome and other syndromic craniosynostosis, rare conditions affecting cranial development.
According to APERTCRAS, Apert syndrome is caused by specific alterations in the FGFR2 gene, leading to the premature closure of certain cranial sutures, a condition known as craniosynostosis. The association's campaign aims to highlight the reality faced by families living with these diagnoses and foster greater social understanding.
APERTCRAS, with 27 years of experience, supports individuals affected by Apert syndrome and other syndromic craniosynostosis. The organization was founded to create a support network against isolation and lack of knowledge. It currently assists families linked to 19 different syndromes and focuses on support, rights advocacy, mutual aid, and promoting scientific research, collaborating with health and social institutions and professionals.
The national campaign emphasizes the importance of visibility as a tool for inclusion. APERTCRAS believes that the participation of public administrations recognizes the reality of affected individuals and raises public awareness. By illuminating its City Hall, San Sebastián de los Reyes joins the initiatives promoted in various municipalities across the country.
